Joining forces against rare diseases
Learn about the work of the associations that make life better for rare disease sufferers
28.FEB.2022 ──────── 29.APR.2022
Exhibition
28.FEB.2022 ── 29.APR.2022
Location
MAPFRE Tower
Hall 2 de Torre MAPFRE, 08005, Barcelona
Monday to Friday from 11:00 am. to 7:00 pm.
*To visit the exhibition, you need to book in advance at the concierge desk in the MAPFRE Tower. Your accreditation card also gives you access to the cafeteria.
In Spain, three million people are affected by rare diseases, pathologies that take a long time to diagnose and which, in many cases, have no adequate treatment. To help sufferers in their day-to-day lives, to speed up diagnosis and to boost research, many social organizations carry out extraordinary work to improve the quality of life of patients and their families.
At Fundación MAPFRE’s Sé Solidario project, we continue to offer our support to small social organizations involved in the field of rare diseases, raising awareness of their formidable efforts. Coinciding with World Rare Disease Day, we opened the exhibition Joining Forces against Rare Diseases.
This exhibition has been created in collaboration with the Spanish Federation for Rare Diseases (Federación Española de Enfermedades Raras; FEDER), an association that represents nearly 400 organisations that help 97,000 people suffering from rare diseases. This association offers guidance and psychological support to all those affected, promoting education and training and developing actions that further research and contribute to social awareness.
During our tour we will meet the following associations: Actays, Mi Princesa Rett, Guerreros Púrpura, Ana Carolina Díez Mahou, Asociación Catalana Síndrome Rett, Fundación LUKAS, FundAME, Asociación Catalana de Síndrome de Prader Willi, Asociación Sonriendo con Martín, Asociación Española contra la Leucodistrofia – ELA España and the Asociación Debra España.
Visit our space dedicated to social exhibitions, discover the work of these charitable organizations and put a face to some of the people involved, in general, children and adolescents who have a better life thanks to the generous work of many people.
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