Wings for Butterfly Skin Disease
Thanks for our support from the NGO ‘DEBRA Piel de Mariposa’
The most visible characteristics of people with Epidermólisis bullosa is their extraordinary fragility. Everyday actions such as walking or eating can be extremely painful for them, as their skin is as fragile as the wings of a butterfly.
The non-government organization DEBRA Piel de Mariposa was founded 28 years ago by a small group of parents with the aim of providing the services and support that the National Health System could not cover in order to improve the everyday lives of their children suffering from this rare disease.
Fundación MAPFRE wanted to support them on this journey to enable them to continue looking after their family members with Butterfly Skin. As a gesture of thanks for this support, the NGO has designed this poster that we would like to share with you.
We are delighted to receive this acknowledgement and feel proud to be able to offer our support to the parents and, indeed, the entire team of nurses, psychologists, social workers and the researcher who strive every day to alleviate the effects of this disease and encourage the development of a cure.
We would like to take this opportunity to thank DEBRA Piel de Mariposa for its generous and committed work in support of more than 300 families affected by Butterfly Skin disease.