Osteogenesis imperfecta, more commonly known as brittle bone disease, affects more than 3,000 people in Spain, a large proportion of whom are children. These youngsters experience great difficulties in their daily lives and, above all, they run dreadful risks when traveling by car, given that they can sustain fractures during everyday journeys due to the fragility of their bones.
Thank you, because through contributions like yours we have managed to raise 50,000 euros to develop this demonstrator project of a child restraint system specifically for children with osteogenesis imperfecta. Through everybody's collaboration and commitment, children like Paula and Lucía will soon be able to travel safely by car in a child seat whose design and development specifically prioritized their safety and comfort.
Fundación MAPFRE started this adventure in the middle of 2016. This relied on the invaluable assistance and commitment of SafeDsign, responsible for the design of the prototype, and the collaboration and participation of the Spanish Brittle Bone Disease Association (AHUCE) and the Spanish Federation for Rare Diseases (FEDER).
This is the first time we have worked on a project like this one, which has been made possible thanks to your generosity. There is now less time to wait until children with these special needs will be able to get access to a child restraint system designed especially for them. Without your help, none of this would have been possible.