Osteogenesis imperfecta, more commonly known as brittle bone disease, affects more than 3,000 people in Spain, a large proportion of whom are children. These youngsters are faced with tremendous difficulties in their day to day lives, especially when it comes to traveling by car. The fragility of their bones can lead to fractures in such everyday situations as traveling in a child restraint system.
We want to thank you because it is through contributions like yours that we have managed to raise 50,000 euros to develop a prototype of a specific child restraint system for children with oteogenesis imperfecta. With everyone's collaboration and commitment, very soon children like Paula and Lucía will be able to travel safely by car in their very own special child seat.
Fundación MAPFRE started work on the design and development of a special child seat for children with brittle bone disease in 2016. In the process we benefited from the support and collaboration of the Spanish Brittle Bone Disease Association (AHUCE), the Madrid Osteogenesis Imperfecta Association (AMOI), the Spanish Rare Diseases Federation (FEDER), the University Institute of Automobile Research (INSIA) and SafeDsign – innovation.
Safety and comfort were the two factors that took top priority when it came to designing and developing the seat. Consequently we opted for a rear-facing child restraint system with a support leg and an anti-rotation system for the straps which also incorporates a harness retractor, like cars, to guarantee the very highest level of safety.
When it comes to comfort, the seat has surfaces that adapt to the body to reduce a build-up of tension in any one place, mobile elements that allow the child to be positioned more easily, without any sudden movements, and a back rest angle that improves comfort and encourages rest.
This is the first time we have worked on a project like this one, which has been made possible thanks to your generosity. There is now less time to wait until children with these special needs will be able to get access to a child restraint system designed especially for them. Without your help, none of this would have been possible. Thank you so much!